This site was developed in late April, 1998 on an AOL website
August ,1998 moved site to Earthlink, and expanded
November, 1998 - between the two sites - in first 6 months -624 visitors
February, 1999 - site updated to comply with various standards to make this a medical web site. AOL continues to carry the old web site. Between the two, there have been 961 visitors in the first 9 months.
9/99 added conservativ e management of HNPP and Survey of people with HNPP
December 99, the site address moved to hnpp.org, we lost the counter during the process. The site has the 'org' address, but remains an independent project. There is not organization at this time.
2/00 - site revised and expanded
Last updated:2/00
Home / What is HNPP? / Other names for HNPP / Varieties of HNPP / HNPP Symptoms / The Genetics of HNPP / Number of People affected / Getting Diagnosed / The Genetic Test / Progression / HNPP Articles and Other Links of Interest / Other Organizations supporting HNPP / Q and A/FAQs / Prevention is key / Conservative management of HNPP / Toxic drug List / Surgery and HNPP / Letter to Surgical Team / Helpful hints by and for people with HNPP / People Say this works for them / Join HNPP e-mail support group / Life with HNPP / Survey of individuals with HNPP / Personal Stories / Significant HNPP Symptoms / Pain / Learning to Pace Activity / Adapting the house, etc / Equipment fundiing / Doctors who treat HNPP / HNPP Researchers / HNPP Experts / Research Studies / Disability and ADA / People First language / Tax Deductions / Glossary / Contact Maureen