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A small, but growing, group of us have started an e-mail support group. We are people who have HNPP. We share and compare the daily struggles of living with HNPP, and other aspects of our lives.

If you would like to join the group, please contact Dan Page, our resident computer guru and list owner. Dan will tell you how to sign upand give you an option of joining a joke group as well.

These are comments made by group members:

I hope you find our group informative, supportive and entertaining. I don't think any of us would have ever known so much about HNPP had it not been for each other. We compare our doctors and we help each other with sympathy for our symptoms. Our symptoms are wide, many and varied. We support each other through thick and thin. We are a real family.

 

This group begins to feel like family after awhile. In fact they often understand better than your loved ones do.

 

Thanks for all the support you've been giving me. I never imagined that joining a group like this would help so much in accepting everything.

Last updated: 1/00

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