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  Physicians who Treat HNPP

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There is no cure for HNPP. But that does not mean that some symptoms cannot be treated. It can be very difficult to find physicians who have ever heard of HNPP. If you and your doctor feel you need to see a physician, who as experience in HNPP, you will probably need to look to the larger Universities. This may very well mean driving for hours to see a doctor.

If driving for hours is not feasible, then work with your family doctor and learn about HNPP together.

The following is a list of physicians who are expereinced with HNPP and can help with patient education and treating symptoms, as they arise. This list only contains names of doctors who have been contacted and agreed to let their names be published here. The list is woefully incomplete.

If you are a physician and would like to have your name added to the list or if you are a person with HNPP and know of a physician to add, please contact me.Maureen Horton

 

This list is in alphabetical order by States/Provinces and then by last name

United States

Alabama

Alaska

Arizona

Arkansas

California

For California Doctors treating HNPP, contact you nearlest MDA clinic http://www.mdausa.org/local/mdalocal_ca.cfm. HNPP is now considered a subtype of CMT, which is covered by MDA.

Colorado

Connecticut

Delaware

Florida

Georgia

Hawaii

Idaho

Illinois

Raymond P. Roos, MD
Professor and Chairman, Department of Neurology
University of Chicago Hospitals
5841 S. Maryland Ave.
Chicago, IL 60637
Appointments: 773-834-5473
Fax: 773-702-9076
 
Betty Soliven, MD
Associate Professor, Department of Neurology
University of Chicago Hospitals
5841 S. Maryland Ave.
Chicago, IL 60637
Appointments: 773-834-5473
Fax: 773-702-9076
 
Kourosh Rezania, MD
Instructor, Department of Neurology
University of Chicago Hospitals
5841 S. Maryland Ave.
Chicago, IL 60637
Appointments: 773-834-5473
Fax: 773-702-9076

 

 

Illinois

Indiana

Iowa

Kansas

David S. Saperstein, M.D.
Assistant Professor
Department of Neurology
The University of Kansas Medical Center
3901 Rainbow Blvd, 1005B Wescoe
Kansas City, KS 66160-7314
PH (913) 588-0619
FAX (913) 588-0618
E-mail dsaperstein@kumc.edu

Kentucky

Louisiana

Carlos A. Garcia, MD
Professor of Neurology
Tulane University - Neurology TB52
1140 Canal St.
New Orleans, LA 70112
Phone : (504) 588-5870
Fax: (504)584-3695
e-mail: cgarcia2@mailhost.Tcs.Tulane.edu 
 
 Austin J. Sumner M.D.
Chairman
LSU Department of Neurology
Louisiana State University Medical Center, New Orleans
1542 Tulane Avenue T2-1
New Orleans, LA 70112
Phone: (504) 568-4082
Fax: (504) 568-7130

Maine

Maryland

Massachusetts

Michigan

Richard Lewis
Department of Neurology
Wayne Sate U. Schoolof Medicine
UHC 6E
420i St. Antoine
Detroit, MI 48201
Phone (313) 577-1245
e-mail: rlewis@med.wayne.edu
 
Michael Shy
Department of Neurology
Wayne Sate U. Schoolof Medicine
UHC 6E
420i St. Antoine
Detroit, MI 48201

Minnesota

Gareth Parry, MD FACP
University of Minnesota
Minneapolis, MN
e-mail : Parry001@maroon.tc.unm.edu
 

Mississippi

Missouri

Montana

Nebraska

Nevada

New Hampshire

New Jersey

New Mexico

New York

North Carolina

North Dakota

Ohio

Oklahoma

Oklahoma

Oregon

Pennsylvania

Rhode Island

South Carolina

South Dakota

Tennessee

 

Dr. Jim Sweeney D.C
Hosenfeld Chiropractic
312 Prosperity Drive, Suite 101
Knoxville, Tn 37923
865-691-3155
865-694-8093 fax
Dr Sweeney wrote in in 9/07 that thery were seeing their first patient with HNPP . Thy are a rehabilitation center that focuses on conservative management of many chronic conditions. We are also a multidisciplinary clinic."

 

 

Texas

Yadollah Harati, MD FACP
Professor, Director Muscle and Nerve Pathology
Baylor College of Medicine
6550 Fannen #1800
Houston, Texas 77030
Phone: (713) 798-5993
Fax: (713) 798-5030
e-mail: yharati@bcm.tmc.edu

Utah

Vermont

Virginia

Washington

West Virginia

Wisconsin

Wyoming

Canada - Alberta

Canada - British Columbia

Canada -Manitoba

Canada -Ontario

Canada - Quebec

John D. Stewart
Professor, Dept. of Neurology & Neurosurgery
Montreal Neurological Hospital and McGill University
3801 University Street, Room 365
Montreal QC, H3A 2B4
Phone (514) 398-8980
Fax: (514) 398-1285
E-mail: mcwa@musica.mcgill.ca

Canada - Saskatchewan

 Switzerland,Geneva

Dr Michael Morris
FAMH Specialist in Medical Genetics
Molecular Diagnostic Laboratory
Geneva University Hospitals, Switzerland
michael.morris@medcli.unige.ch.
In our service we offer both genetic testing and genetic counselling, for HNPP as well as for many other genetic diseases. You may be interested to know that, since we started offering testing in 1996, we have performed
about 150 tests for HNPP, and have identified and follow 19 families in our area. (3/04)

 

 Last updated: 12/04